#7 - The Man Trying to Cure ME/CFS & Long Covid - Prof. Klaus Wirth Interview
In this interview, I talk to Prof Klaus With, the man trying to create the world's first approved medication for ME/CFS & Long Covid (Mitodicure).
🧠 This 45-minute deep dive explores the groundbreaking research that led to the current development efforts of Mitodicure and Prof. Wirth’s unifying model of ME/CFS — created in collaboration with Prof. Carmen Scheibenbogen.
We cover:
🔹 How Mitodicure is designed to heal the illness and not just suppress symptoms
🔹 Why it could significantly raise the PEM/crash threshold, improving quality of life but also allowing much deeper healing to occur (as PEM heightens and intensifies the illness)
🔹 What a patient might actually feel when taking the drug
🔹 Why drug-development-style research is vital to accelerate our understanding of ME/CFS pathophysiology
🔹 How the mystery of low blood volume in ME/CFS can be explained
🔹 How the Wirth and Scheibenbogen model accounts for muscle fibre necrosis during PEM
This may be one of the most hopeful developments the ME/CFS and Long Covid communities have seen in years.
🙏 Please watch, share widely, and help raise awareness.
The more visibility Mitodicure receives, the greater the chance of attracting investors for clinical trials — and, potentially, the possible breakthrough millions have been waiting for.
To keep up to date with Prof Wirth's work, follow the Mitodicure website: www.mitodicure.com
More about your host, Patrick Ussher
For my personal website, writings/talks, YouTube channel, Understanding ME/CFS book, social media, etc, please follow this link: https://linktr.ee/patrickussher
#MECFS #CureLongCovid #CureMECFS #Research #Medication #Mitodicure
Intro music: The Path (piano & strings) by Patrick Ussher
**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**
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#6 - Finding a Meaningful Life with ME/CFS & Paralysis: Ray's Story
In today's episode I talk to Ray about his story with ME/CFS and serious other health problems, including paralysis from motor axon neuropathy. Initially sick after exposure to a nerve agent, Ray has struggled with debilitating health problems for almost two decades. But how does he stay positive? How does he still try to take personal responsibility for his health? And what message does he have for the ME/CFS community?
More about Ray Crowninshield
YouTube Channel - https://www.youtube.com/@truemecfsuncensored1022
More about your host, Patrick Ussher
For my personal website, writings/talks, YouTube channel, Understanding ME/CFS book, social media, etc, please follow this link: https://linktr.ee/patrickussher
#LongCovid #MECFS #Mindset #Positivity #
Intro music: The Path (piano & strings) by Patrick Ussher
**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**
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#5 - Fleury's Long Covid HBOT and Neuroplasticity Recovery Story
Fleury Simons was severely ill with Long Covid for nearly three years — and is now fully recovered.
In this interview, she shares the treatments and strategies that changed her life. After struggling with debilitating symptoms and little hope of improvement, Fleury travelled to the Aviv Clinics in Florida, where she completed 60 sessions of medical-grade hyperbaric oxygen therapy (HBOT).
She explains how HBOT helped both her body and brain to recover, the role neuroplasticity and mindset work played in her healing, and the additional tools that supported her along the way.
More about Fleury:
https://fleurysimons.com/
https://www.instagram.com/mylongcovidmission/
More about your host, Patrick Ussher
For my personal website, writings/talks, YouTube channel, Understanding ME/CFS book, social media, etc, please follow this link: https://linktr.ee/patrickussher
#HBOT #MECFS #Hyperbaric #LongCovid #Recovery #Brainretraining
Intro music: The Path (piano & strings) by Patrick Ussher
**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**
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#4 - 60 Sessions of HBOT Gave Matthew His Life Back! From Long Covid Bedridden to 5K.....
From being bedridden to running 5K twice a week —Prof Matthew Robinson’s story shows what recovery from Long Covid, ME/CFS, and POTS can look like.
In this interview, Matthew shares how 60 sessions of medical-grade hyperbaric oxygen therapy (HBOT) at Aviv Clinics in Florida transformed his health. Once unable to function for long periods, he is now back to traveling internationally and working as a Professor of Criminal Justice.
Alongside HBOT, Matthew also credits part of his recovery to three medications: midodrine, low-dose Abilify, and low-dose Naltrexone (LDN).
More about Matthew
His ME/CFS & Long Covid Book - https://www.amazon.com/Long-Haul-Four-Year-Battle-Beat-Long-COVID-ebook/dp/B0D6SVM3S1
More about your host, Patrick Ussher
For my personal website, writings/talks, YouTube channel, Understanding ME/CFS book, social media, etc, please follow this link: https://linktr.ee/patrickussher
#HBOT #MECFS #LongCovid #Recovery #Hyperbaric #LDN
Intro music: The Path (piano & strings) by Patrick Ussher
**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**
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#3: The Power of a Positive Mindset for Coping with ME/CFS - Interview with Sarah Warde
In the third episode of the Understanding ME/CFS podcast, I talk to Sarah Warde about her experience of living with ME/CFS. Sarah's has taken an inspiring approach to managing her illness for over two decades, readjusting her life and mindset to still try to find joy, despite having ME/CFS. She is also an author about an ME/CFS book (link below), gives regular talks to IMET (Irish ME Trust) and has been part of the European ME Alliance.
More about Sarah
Her ME/CFS book - https://a.co/d/f5lC5g3
Irish ME Trust - www.imet.ie
More about your host, Patrick Ussher
For my personal website, writings/talks, YouTube channel, Understanding ME/CFS book, social media, etc, please follow this link: https://linktr.ee/patrickussher
Intro music: The Path (piano & strings) by Patrick Ussher
**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**
Interviews with patients and experts on all things ME/CFS (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome), Long Covid, POTS, Fibromyalgia and other closely related illnesses. Accessible discussion of breakthrough research and treatments, quality of life improvements and even recovery stories.
Patrick Ussher, ME/CFS patient, is your host for this podcast. Patrick has had ME/CFS for seven years, has a YouTube channel ('Understanding ME-CFS') and is also author of the book Understanding ME/CFS & Strategies for Healing.
For all Patrick's links (personal website, YouTube, books, media etc), please follow https://linktr.ee/patrickussher
The Understanding ME/CFS Podcast is Turny:
https://www.turnto.ai/weekly-updates?fpr=patrick58
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