OPENPediatrics

In this special Complex Care Journal Club podcast episode, co-hosts Drs. Emily Goodwin, Kristie Malik, and Kathleen Huth interview presenters of posters and abstracts relevant to the care of children with medical complexity at the American Academy of Pediatrics 2026 National Conference & Exhibition. Presenters at the Council on Children with Disabilities and Section on Home Care sessions describe their study findings and implications for practice. Topics include sensory-friendly office visits for children with autism, outpatient pressure injuries, anticholinergic medication burden, gaps in private duty nursing, and legislative advocacy for paid family caregiving.

SPEAKERS
Esther Chung, BA
Medical Student
Albert Einstein College of Medicine

Lynn Davidson, MD
Associate Professor
Children’s Hospital at Montefiore
The Pediatric Hospital for Albert Einstein College of Medicine

Madison Harland, MD
Pediatrics Resident
University of Oklahoma

Molly Khoury, MD
Complex Care Pediatrician
Oklahoma Children's Hospital at OU Health

Amanda Page, MD
Complex Care Pediatrician,
Medical Director of Pediatric Complex Care Team
Oklahoma Children's Hospital
University of Oklahoma

Mason Rostollan, MD, MA
Fellow, Developmental-Behavioral Pediatrics
University of Arkansas for Medical Sciences

Casey Youk, BS
Recent Graduate
University of Pittsburgh
UPMC Children's Hospital

CO-HOSTS
Emily J. Goodwin, MD
Clinical Associate Professor of Pediatrics,
University of Missouri Kansas City School of Medicine
Pediatrician, General Academic Pediatrics Beacon Program,
Children’s Mercy Kansas City

Kristina Malik, MD
Assistant Professor of Pediatrics,
University of Colorado School of Medicine
Medical Director, KidStreet
Pediatrician, Special Care Clinic,
Children’s Hospital Colorado

Kathleen Huth, MD, MMSc
Pediatrician, Complex Care Service, Division of General Pediatrics,
Boston Children's Hospital
Assistant Professor of Pediatrics,
Harvard Medical School

DATE
Initial publication date: November 10, 2026.

REFERENCES
American Academy of Pediatrics Section on Home Care and Council on Children with Disabilities. Abstract presentations. Presented at: AAP Experience: National Conference & Exhibition; October 2-6, 2026; San Diego, CA. Accessed October 20, 2026. https://aapexperience.org/‌

TRANSCRIPT
https://cdn.bfldr.com/D6LGWP8S/as/sz4trb3njwvm9x7mrzpx/AAP_Transcript_10-28-26

Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: https://forms.gle/Bdxb86Sw5qq1uFhW6.

Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu

CITATION
Huth K, Malik K, Chung EA, Davidson LF, Harland M, Khoury M, Page A, Rostollan M, Youk C, Goodwin E. Practice-Changing Research in Complex Care at the American Academy of Pediatrics Conference 2026. 11/2026. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/practice-changing-research-in-complex-care-at-the-american-academy-of-pediatrics-conference-2026.

This podcast focuses on essential information for neonatal and pediatric critical care, and fetal care providers to serve as Spiritual Care Agents in their clinical settings.

LEARNING OBJECTIVES
- Define spirituality and spiritual care
- Discuss how to identify spiritual care needs in critical care and fetal care settings
- Anticipate how to address spiritual needs of pediatric patients and families
- Review spiritual care screening tools
- Describe how to integrate spiritual care into interprofessional practice

AUTHORS
Melissa Vela, DMin, BCC
Chaplain, Spiritual Care
Boston Children's Hospital

Ibrahim Sayar, MA, BCC
Chaplain, Spiritual Care
Boston Children's Hospital

Ann Haywood-Baxter, MDiv, BCC
Chaplain, Spiritual Care
Boston Children's Hospital

Susan Harris, MHL, BCC
Director, Spiritual Care
Boston Children's Hospital

Michele DeGrazia, PhD, RN, NNP-BC, FAAN
Director of Research, NICU
Nurse Scientist
Maternal Child Health Faculty, Sandra L. Fenwick Institute
Boston Children's Hospital

DATES
Initial Publication: November 2, 2026.

Please visit: www.openpediatrics.org

OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access, thus at no expense to the user.

For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu

CITATION
Vela M, Sayar I, Haywood-Baxter A, Harris S, Marcley S, DeGrazia M. Spiritual Care Agents in Pediatric and Fetal Care Settings. 11/2026. OPENPediatrics. Online Podcast. https://on.soundcloud.com/E2YbsDsBXq9tC6jX3v.

In this World Shared Practice Forum podcast, Dr. David Inwald discusses the findings of the recently published PRESSURE randomized clinical trial. The trial evaluated permissive blood pressure targets for critically ill children receiving mechanical ventilation and vasoactive support compared to usual care. Dr. Inwald reviews the rationale that prompted the study, summarizes the primary and secondary outcomes, and discusses clinical implications of the findings. The host and speaker also explore how these results may influence hemodynamic management and evidence-based decision-making across diverse healthcare settings.

LEARNING OBJECTIVES
- Describe the rationale for investigating permissive blood pressure targets in pediatric critical care that led to the PRESSURE trial
- Analyze the study design, inclusion criteria, intervention strategy, and primary outcomes of the PRESSURE randomized clinical trial
- Interpret the trial's findings regarding clinical outcomes, safety measures, and adverse events associated with permissive MAP targeting
- Evaluate the implications of the PRESSURE trial findings for pediatric critical care practice across diverse healthcare settings

AUTHORS
David Inwald, MB, BChir, FRCPCH, PhD
Service Director, PICU consultant
The Portland Hospital, London

Jeffrey Burns, MD, MPH
Emeritus Chief
Division of Critical Care Medicine
Department of Anesthesiology, Critical Care and Pain Medicine
Boston Children's Hospital
Professor of Anesthesia
Harvard Medical School

DATE
Initial publication date: October 27, 2026.

REFERENCES
Inwald DP, Laing E, Broomhall JM, et al. Permissive Blood Pressure Targets in Pediatric Critical Care: The PRESSURE Randomized Clinical Trial. JAMA. Published online September 28, 2026. doi:10.1001/jama.2026.19747

Bulgakov, M. (1975). A Country Doctor's Notebook (M. Glenny, Trans.). Oxford University Press. (Original work published 1925–1926)

TRANSCRIPT
https://cdn.bfldr.com/D6LGWP8S/as/44tqhjqtkt7cfwhjcxfnnt6/20261021_WSP_Inwald_Transcript

Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu

CITATION
Inwald D, O’Hara J, Burns JP. Insights from the PRESSURE Trial. 10/2026. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/insights-from-the-pressure-trial-d-inwald-openpediatrics.

In this special Complex Care Journal Club podcast episode, host Dr. Kilby Mann interviews presenters of posters and educational sessions relevant to the care of children with medical complexity at the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) 80th Annual Meeting, September 27-30, 2026, in Philadelphia, Pennsylvania. Speakers describe their key lessons learned and the value of partnering with people with lived experience in training and program design.‌

SPEAKERS
Dynai Eilig, MD, MBA
Orthopedic Surgeon
Clinical Associate, Pediatric Orthopedic Department
British Columbia Children’s Hospital
Clinical Assistant Professor
University of British Columbia

Lauren Fetsko, DO
Assistant Professor of Pediatrics
University of Wisconsin

Catherine Jones, BSc
Dietitian
British Columbia Children’s Hospital

Esther Lee, MD
Clinical Assistant Professor
University of British Columbia

Sara Liegel, MD
Assistant Professor of Pediatrics
University of Wisconsin

Jordan Sheriko, MD
Assistant Professor
Medical Director of Pediatric Rehabilitation
Dalhousie University

Melissa Villegas, MD
Assistant Professor of Pediatrics
University of Wisconsin

HOST
Kilby Mann, MD
Associate Professor
Director of Pediatric Rehabilitation
University of North Carolina School of Medicine

DATE
Initial publication date: October 20, 2026.

RESOURCES REFERENCED
- American Academy for Cerebral Palsy and Developmental Medicine. 2026 AACPDM final program. Accessed October 5, 2026. https://www.aacpdm.org/UserFiles/file/am26-PhiladelphiaFP-v8-web.pdf

- Brooks J, Day S, Shavelle R, Strauss D. Low weight, morbidity, and mortality in children with cerebral palsy: new clinical growth charts. Pediatrics. 2011;128(2):e299-e307. doi:10.1542/peds.2010-280."

- MacLellan A, Farid Marihan, Ford Z. Am I Ableist?: Disability Awareness in Healthcare. Accessed October 5, 2026. https://sites.google.com/view/amiableist/home

- Perioperative Clinical Action Network, Specialist Services Committee. Pediatric Surgical Prehabilitation Toolkit. Published August 2026. Accessed October 12, 2026. https://sscbc.ca/sites/default/files/surgical-prehabilitation/BC%20Pediatric%20Toolkit.pdf

- Specialist Services Committee. Surgical prehabilitation toolkit for healthcare providers. Published 2025. Accessed October 12, 2026. https://sscbc.ca/surgical-prehab-toolkit

TRANSCRIPT
https://cdn.bfldr.com/D6LGWP8S/as/c5ws3wcg4zfgfx98t7cgx/AACPDM_Transcript_10-13-26_kh%E2%80%8C

Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: https://forms.gle/Bdxb86Sw5qq1uFhW6.

Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu

CITATION
Eilig D, Fetsko L, Jones C, Lee E, Liegel S, Sheriko J, Villegas M, Mann K. Practice-Changing Research in Complex Care at the AACPDM Annual Meeting 2026. 10/2026. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/practice-changing-research-in-complex-care-at-the-aacpdm-annual-meeting-2026.

This Nursing World Shared Practice Forum explores end-of-life care simulation and skills education, designed to strengthen acute care nurses’ clinical skills, communication abilities, and resilience. The panel discusses the inspiration and evolution of the program, its target audience, course structure, high-fidelity simulation experiences, and methods used to evaluate outcomes. Speakers highlight how simulation provides a psychologically safe environment for nurses to practice difficult conversations. They also share lessons learned from implementing the program and offer practical guidance for organizations and nurse leaders considering similar initiatives.

LEARNING OBJECTIVES
- Describe the rationale and inspiration for developing a pediatric end-of-life care simulation program
- Identify key components of an effective end-of-life simulation program, including psychological safety, communication skills practice, high-fidelity simulation, and structured debriefing
- Explain how simulation can help nurses develop confidence and skills for difficult end-of-life conversations and emotionally complex clinical situations
- Identify key considerations for developing, evaluating, and sustaining an end-of-life simulation program within a healthcare organization

AUTHORS
Patricia Hickey, PhD, MBA, RN, NEA-BC, FAAN
Senior Vice President, Associate Chief Nursing Officer (ACNO)
Cardiovascular, Critical Care, Perioperative Nursing/PCO
Boston Children’s Hospital
Assistant Professor of Pediatrics
Harvard Medical School

Michele DeGrazia, PhD, RN, NNP-BC, FAAN
Director of Research
Neonatal Intensive Care Unit (NICU)
Maternal Child Health Faculty,
Sandra L. Fenwick Institute
Nurse Scientist
Boston Children's Hospital

Dorothy Beke, MS, RN, CPNP-PC/AC, WCC, FAAN
Cardiac Intensive Care Unit Nurse Practice Specialist
CICU Mechanical Circulatory Support Nursing Resource
Cardiology Clinic Nurse Practitioner
Heart Center Bereavement Coordinator
Boston Children's Hospital

Annette Imprescia, BSN, RN, CCRN
Clinical Educator
Staff Nurse III
Associate Clinical Director of Nursing
Immersive Design Systems, Cardiac Intensive Care Unit
Boston Children's Hospital

JoEllen Edson, MSN, RN, CPHON
Professional Development Practitioner
Stem Cell Transplant Unit
Boston Children's Hospital

DATE
Initial publication date: October 13, 2026.

TRANSCRIPT
https://cdn.bfldr.com/D6LGWP8S/as/n9bg8gsrx94phc5338j6v6g/NWSP_Building_Nurse_Resilience_Through_End-of-Life_Care_Training__Hickey_101226

Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu

CITATION
Hickey PA, DeGrazia M, Beke DM, Imprescia A, Marcley S, Edson JE. Building Nurse Resilience Through End-of-Life Care Training. 10/2026. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/building-nurse-resilience-through-end-of-life-care-training-by-p-hickey-et-al-openpediatrics.