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Let’s Talk about Transition: Experiences of Young Adults with Cerebral Palsy and Their Caregivers‌
In this Complex Care Journal Club podcast episode, Dr. Cristina Sarmiento discusses a qualitative study exploring experiences of young adults with cerebral palsy and their caregivers with transition to adult care. She describes the major barriers and facilitators to transition, challenges and opportunities related to conducting the study, implications for practice, and next steps from this work. SPEAKER Cristina Sarmiento, MD Assistant Professor University of Colorado Anschutz Medical Campus HOST Emily J. Goodwin, MD Clinical Associate Professor of Pediatrics University of Missouri Kansas City School of Medicine Pediatrician, General Academic Pediatrics Beacon Program Children’s Mercy Kansas City DATE Initial publication date: March 10, 2025. ARTICLE REFERENCED Sarmiento CA, Wyrwa JM, Glaros C, Holliman BD, Brenner LA. Experiences of young adults with cerebral palsy in pediatric care transitioning to adult care. Dev Med Child Neurol. 2025 Jan;67(1):99-110. doi: 10.1111/dmcn.15907. Epub 2024 Mar 24. PMID: 38523396.‌ TRANSCRIPT https://cdn.bfldr.com/D6LGWP8S/as/63kfcjrfv57nh4t8qbrhrvj/March_CCJCP_Sarmiento_transcript_Final_3-5‌ Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: forms.gle/Bdxb86Sw5qq1uFhW6 Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access thus at no expense to the user. For further information on how to enroll, please email: [email protected] CITATION Sarmiento, C, Goodwin EJ. Let’s Talk about Transition: Experiences of Young Adults with Cerebral Palsy and their Caregivers. 3/2025. OPENPediatrics. Online Podcast.
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Transplant Challenges in Pediatric Liver Failure by A. Deep et al. | OPENPediatrics
In this World Shared Practice Forum podcast, Dr. Jeffrey Burns converses with experts Drs. Akash Deep, James Squires, and Barbara Wildhaber about pediatric acute liver failure and the intricacies of deciding when a child is unsuitable for liver transplantation. Discussing insights from their 2024 Lancet Child Health and Adolescent Health paper, they emphasize the importance of a multidisciplinary approach in evaluating clinical, biochemical, psychosocial, and ethical factors. The conversation highlights challenges with exclusion criteria, risks associated with severe multi-organ failure, and the necessity of balancing technical feasibility with overall patient prognosis, while also addressing the ethical implications of organ allocation. LEARNING OBJECTIVES - Identify key clinical and biochemical factors in evaluating pediatric liver transplant suitability - Discuss the ethical and logistical considerations impacting transplant decisions in critically ill children with liver failure - Summarize multidisciplinary approaches for determining when a child may be unsuitable for a liver transplant AUTHORS Akash Deep, MD, FRCPCH Director - Paediatric Intensive Care Unit and Staff Governor King's College Hospital, London Professor in Paediatric Critical Care King's College London James Squires, MD, MS Associate Professor, Pediatrician UPMC Children's Hospital of Pittsburgh Barbara Wildhaber, MD Professor University Hospitals of Geneva Chief Physician Child and Adolescent Surgery Swiss Pediatric Liver Center Jeffery Burns, MD, MPH Emeritus Chief Division of Critical Care Medicine Department of Anesthesiology, Critical Care and Pain Medicine Boston Children's Hospital Professor of Anesthesia Harvard Medical School DATE Initial publication date: February 25, 2025. ARTICLE REFERENCED Deep A, Alexander EC, Brierley J, Damian M, Gupta A, McLin V, Sarma MS, Squires JE, Wildhaber BE. Paediatric acute liver failure: a multidisciplinary perspective on when a critically ill child is unsuitable for liver transplantation. Lancet Child Adolesc Health. 2024 Dec;8(12):921-932. doi: 10.1016/S2352-4642(24)00255-4. TRANSCRIPT https://cdn.bfldr.com/D6LGWP8S/at/kn5r4s2wrnh3pm24gb9hkpvk/022025_WSP_Deep_Transplant_Challenges_in_Pediatric_Liver_Failure_Transcript.pdf Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access thus at no expense to the user. For further information on how to enroll, please email: [email protected] CITATION Deep A, Squires J, Wildhaber BE, Burns JP. Transplant Challenges in Pediatric Liver Failure. 02/2025. OPENPediatrics. Online Podcast: https://soundcloud.com/openpediatrics/transplant-challenges-in-pediatric-liver-failure-by-a-deep-et-al-openpediatrics.
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32:04
Focus on Abilities: Parent-Identified Outcomes of Preterm Infants‌
In this Complex Care Journal Club podcast episode, Ms. Pearce and Dr. Synnes discuss a series of patient-oriented research studies aimed at partnering with parents in reimagining meaningful outcomes for premature infants. They describe the inclusion of parents on the study team, recruitment of parent participants, lessons and challenges while conducting the study, messages for other researchers and parents, and the next steps from this work. SPEAKERS Rebecca Pearce, B. Ed, MSc Vice Principal Villa Maria High School Parent Partner CHU Sainte-Justine and Canadian Premature Babies Foundation‌ Anne Synnes, MDCM, MHSc Clinical Professor, Neonatologist University of British Columbia British Columbia's Women's Hospital and British Columbia's Children's Hospital Research Institute HOST Kilby Mann, MD Assistant Professor Pediatric Rehabilitation Medicine Children's Hospital Colorado DATE Initial publication date: February 10, 2025. ARTICLES REFERENCED Pearce R, Synnes A, Lam MM, Richter LL, Bacchini F, Jones M, Luu TM, Janvier A; PARENTS’ VOICE NETWORK. Partnering With Parents to Change Measurement and Reporting of Preterm Birth Outcomes. Pediatrics. 2024 Nov 1;154(5):e2024067093. doi: 10.1542/peds.2024-067093. PMID: 39354888. Haslam MD, Lisonkova S, Creighton D, Church P, Yang J, Shah PS, Joseph KS, Synnes A; Canadian Neonatal Network and the Canadian Neonatal Follow-Up Network. Severe Neurodevelopmental Impairment in Neonates Born Preterm: Impact of Varying Definitions in a Canadian Cohort. J Pediatr. 2018 Jun;197:75-81.e4. doi: 10.1016/j.jpeds.2017.12.020. Epub 2018 Feb 3. PMID: 29398054. TRANSCRIPT https://cdn.bfldr.com/D6LGWP8S/as/p65m4p98gppf65mz3zhmm9g/February_Pearce_and_Synnes_ccjcp_final_revisions‌ Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access thus at no expense to the user. For further information on how to enroll, please email: [email protected] CITATION Pearce R, Synnes A, Mann K. Focus on Abilities: Parent-Identified Outcomes of Preterm Infants. 2/2025. OPENPediatrics. Online Podcast: https://soundcloud.com/openpediatrics/focus-on-abilities-parent-identified-outcomes-of-preterm-infants
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Updates in Pediatric ECMO: Challenges and Opportunities by P. Alexander, R. Barbaro | OPENPediatrics
In this World Shared Practice Forum podcast, Dr. Dennis Daniel discusses pediatric extracorporeal life support (ECLS) with experts Drs. Peta Alexander and Ryan Barbaro. They explore the differences between pediatric and adult extracorporeal cardiopulmonary resuscitation (ECPR), highlighting differing causes of cardiac arrest and the interpretation of recently published studies. The discussion also covers supply chain issues affecting ECMO availability, the importance of standardized, evidence-based practices to identifying ECMO-associated complications, and opportunities for future research into ECMO use and outcomes. LEARNING OBJECTIVES - Identify the key differences between pediatric and adult extracorporeal cardiopulmonary resuscitation (ECPR), focusing on technical challenges and typical causes of cardiac arrest - Discuss the challenges facing standardization of pediatric ECMO care, including supply chain issues and approaches to capturing and classifying ECMO-associated complications - Describe areas of need and opportunity for future research in pediatric ECMO AUTHORS Peta Alexander, MBBS, FRACP, FCICM Senior Associate Cardiologist Director of ECMO Program Boston Children’s Hospital Associate Professor in Pediatrics Harvard Medical School Ryan Barbaro, MD, MSc Service Chief of Pediatric Critical Care Medicine Director of Pediatric ECMO C.S. Mott Children's Hospital Clinical Associate Professor in Pediatric Critical Care University of Michigan Dennis Daniel, MD ECMO Medical Director, Medical-Surgical ICU Associate Director, OPENPediatrics Boston Children’s Hospital DATE Initial publication date: January 27, 2025. ARTICLES REFERENCED AND ADDITIONAL RESOURCES - Alexander PMA, Di Nardo M, Combes A, et al. Definitions of adverse events associated with extracorporeal membrane oxygenation in children: results of n international Delphi process from the ECMO-CENTRAL ARC. Lancet Child Adolesc Health. 2024;8(10):773-780. https://pubmed.ncbi.nlm.nih.gov/39299748/ - UK collaborative randomised trial of neonatal extracorporeal membrane oxygenation. UK Collaborative ECMO Trail Group. Lancet. 1996;348(9020):75-82. https://pubmed.ncbi.nlm.nih.gov/8676720/ - Biomarkers of Brain Injury in Critically-Ill Children on Extracorporeal Membrane Oxygenation (ECMOhttps://reporter.nih.gov/project-details/10545733 - TITRE - Trial of Indication-based Transfusion of Red Blood Cells in ECMO, https://www.childrenshospital.org/clinical-trials/nct05405426 - ASCEND study: https://chear.org/our-research/projects/ascend-ards-children-and-ecmo-initiation-strategies-impact-neuro-development TRANSCRIPT https://cdn.bfldr.com/D6LGWP8S/at/bzpc2445cxrk9zch4wqvjjs5/012525_WSP_Updates_in_Pediatric_ECMO.pdf Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access, thus at no expense to the user. For further information on how to enroll, please email: [email protected] CITATION Alexander PMA, Barbaro RP, Daniel D. Updates in Pediatric ECMO: Challenges and Opportunities. 01/2025. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/updates-in-pediatric-ecmo-challenges-and-opportunities-by-p-alexander-r-barbaro-openpediatrics.
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32:30
The Role of Nurse Practitioners in Healthcare and Policy by F. Bowen | OPENPediatrics
In this Nursing World Shared Practice Forum podcast, Dr. Felesia Bowen, president-elect of the National Association of Pediatric Nurse Practitioners (NAPNAP), discusses the evolving role of nurse practitioners (NPs) in healthcare, and emphasizes the importance of NPs in health promotion and policy. She highlights the need for a national standardized scope of practice for NPs and advocates for increased diversity in the nursing workforce to address health and educational disparities. LEARNING OBJECTIVES - Describe the nurse practitioner's role within healthcare - Explain how current legislative and regulatory issues in the United States impact the nurse practitioner role - Discuss NAPNAP’s plan to support health equity and expand global partnerships - Describe ways to diversify and support the nursing workforce to reduce health disparities AUTHORS Felesia Bowen, PhD, DNP, PPCNP-BC, FADLN, FAAN President-elect of NAPNAP, 2024-2027 Professor and Associate Dean for Access and Engagement University of Alabama at Birmingham Julia McSweeney, MSN, RN, CPNP Senior Director of Advanced Nursing Practice Boston Children’s Hospital DATE January 20, 2025. TRANSCRIPT https://cdn.bfldr.com/D6LGWP8S/as/ksm5qr297mrv3j8fkm7x6mtj/011624_NWSP_Bowen_The_Role_of_Nurse_Practitioners_in_Healthcare_and_Policy Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.For further information on how to enroll, please email: [email protected] CITATION Bowen FR, Marcley S, DeGrazia M, McSweeney JE. The Role of Nurse Practitioners in Healthcare and Policy 01/2025. OPENPediatrics. https://soundcloud.com/openpediatrics/the-role-of-nurse-practitioners-in-healthcare-and-policy-by-f-bowen-openpediatrics.
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29:36